Grantmaking public charity · EIN 27-0924627
Dravet Syndrome Foundation Inc
Cherry Hill, NJ
Dravet Syndrome Foundation Inc is a public charity that makes grants based in Cherry Hill, NJ. On its Form 990 (Schedule I) for tax year 2025, it reported $2.8M in grants paid across 39 grants, with $9.83M in total assets. Its largest grants went to Regents of the University of Michigan, Regents of the University of Colorado and Allen Institute.
How to request funding
Its Form 990 lists the grants it made but not how it chooses recipients. Check Dravet Syndrome Foundation Inc's website or contact it to ask whether it considers requests.
How it makes and monitors grants (Schedule I, Part IV)
DSF provides funds for research. The organizations receiving this assistance are required to provide written progress reports on their research into finding a cure for Dravet syndrome and related epilepsies. The Chief Scientific Officer of DSF reviews the written progress reports and discusses the research projects and progress with the awarded organization. DSF is committed to supporting families in meaningful and practical ways through a range of patient community-focused grant programs. These include: Patient Assistance Grants, which help cover the cost of essential medical and therapeutic equipment. Disaster Relief Grants, designed to provide immediate assistance to families impacted by natural disasters during times of unexpected hardship. Caregiver Connect Grants, which fund opportunities for families to come together regionally, fostering connection, shared experiences, and peer support. Bereavement Grants, offering compassionate support to families who have experienced the loss of a child.
Grants as reported on its Form 990 for tax year 2025; the application guidance above is general for this type of funder. Requirements change; confirm with the organization before applying.
Mission
The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families.
As stated on its Form 990.
Largest grants, tax year 2025
Historical data · not a prediction| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| Regents of the University of Michigan | Ann Arbor, MI | 1. University of Michigan - Special Project Funding:Understanding Phenotypes and Biomarkers Leading to SUDEP in a Transgenic Rabbit Model - $750,000. This study | $779,250 |
| Regents of the University of Colorado | Denver, CO | Dravet Syndrome Natural History Study. The Natural History study will recruit and follow children and adults with Dravet Syndrome to track how often and how sev | $662,231 |
| Allen Institute | Seattle, WA | Circuit-Selective Whole SCN1A Gene Delivery for Dravet Syndrome. This research focuses on delivering a full-length functional gene specifically to affected neur | $449,785 |
| The Board of Trustees of the Leland Stanford Junior University | Stanford, CA | Identification of Behavioral Biomarkers in Children with DS: A Pilot Study In conjunction with University of Michigan, this pilot study seeks utilize AI and mac | $309,500 |
| Children's Hospital of Pennsylvania | Philadelphia, PA | 1. In conjunction with Tel Aviv University and Institut de Génétique Moléculaire de Montpellier - Transformational Science Grant: Molecular Characterization of | $240,000 |
| The Broad Institute of MIT and Harvard | Cambridge, MA | In conjunction with The Children's Hospital of Philadelphia, Base Editing for the Treatment and Prevention of Dravet Syndrome. This project aims to develop a pr | $100,000 |
| The Research Foundation for the State University of New York | Albany, NY | Award Supplement for Genetic Substrates and Physiological Triggers for Autonomic and Cardiac Abnormalities. This project investigates the genetic and physiologi | $100,000 |
| The Children's Hospital Corporation dba Boston Children's Hospital | Boston, MA | Selective Activation of Hippocampal Parvalbumin Interneurons via Focused Ultrasound Neuromodulation for Seizure Suppression in SCN1A Mice. This project evaluate | $77,500 |
| Coriell Institute for Medical Research | Camden, NJ | Creating a biobank of patient-derived induced pluripotent stem cells. This project aims to establish a biobank of five unique lines of commercially-available in | $9,369 |
The 9 largest of 39 grants listed on the return. 30 grants to individuals ($25.8K) are counted but not named. Names and purposes as reported to the IRS.
Where its grants went
Quick answers
Does Dravet Syndrome Foundation Inc accept grant applications?
Its Form 990 lists the grants it made but not how it chooses recipients. Check Dravet Syndrome Foundation Inc's website or contact it to ask whether it considers requests. Form 990 does not report an application process, so confirm with the organization.
How much does Dravet Syndrome Foundation Inc give each year?
For tax year 2025, it reported $2,803,421 in grants paid (39 grants). Giving can change from year to year.
What organizations has Dravet Syndrome Foundation Inc funded?
Its largest grants in tax year 2025 went to Regents of the University of Michigan (MI), $779K, Regents of the University of Colorado (CO), $662K, Allen Institute (WA), $450K, The Board of Trustees of the Leland Stanford Junior University (CA), $310K and Children's Hospital of Pennsylvania (PA), $240K.