Grantmaking public charity · EIN 52-2122720
Friedreich's Ataxia Research Alliance
Springfield, VA
Friedreich's Ataxia Research Alliance is a public charity that makes grants based in Springfield, VA. On its Form 990 (Schedule I) for tax year 2024, it reported $7.13M in grants paid across 33 grants, with $6.95M in total assets. Its largest grants went to The Broad Institute, Children's Hospital of Philadelphia Research Institute and Children's Hospital of Philadelphia Foundation.
How to request funding
Its Form 990 lists the grants it made but not how it chooses recipients. Check Friedreich's Ataxia Research Alliance's website or contact it to ask whether it considers requests.
How it makes and monitors grants (Schedule I, Part IV)
Grants are reviewed by independent scientific advisors and approved by board. once grants are awarded the organization requires regular research and financial reports from the institutions. fara instituted a program to support young emerging scientists (up to six per year) with the fara fellows award. applications are submitted by the fellows and their mentors and are reviewed by independent scientific advisors and approved by the board.
Grants as reported on its Form 990 for tax year 2024; the application guidance above is general for this type of funder. Requirements change; confirm with the organization before applying.
Mission
To treat and cure friedreich's ataxia (fa) by advancing research, awareness and partnerships.
As stated on its Form 990.
Largest grants, tax year 2024
Historical data · not a prediction| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| The Broad Institute | Cambridge, MA | Medical Research | $1,945,086 |
| Children's Hospital of Philadelphia Research Institute | Philadelphia, PA | Medical Research | $713,919 |
| Children's Hospital of Philadelphia Foundation | Philadelphia, PA | Medical Research | $500,000 |
| University of Florida | Gainesville, FL | Medical Research | $359,182 |
| Regents of the University of Minnesota | Minneapolis, MN | Medical Research | $339,615 |
| Massachusetts General Hospital | Boston, MA | Medical Research | $313,988 |
| University of Massachusetts | Boston, MA | Medical Research | $300,000 |
| Weill Medical College of Cornell University | New York, NY | Medical Research | $274,855 |
| Stanford University | Stanford, CA | Medical Research | $250,000 |
| Vesigen Inc | Cambridge, MA | Medical Research | $204,136 |
| The Regents of the University of California San Diego | La Jolla, CA | Medical Research | $194,830 |
| Stealth Biotherapeutics Inc | Needham, MA | Medical Research | $185,182 |
| The Regents of the University of California Davis | Davis, CA | Medical Research | $150,000 |
| Columbia University | New York, NY | Medical Research | $125,000 |
| Rgenta Therapeutics Inc | Woburnma, MA | Medical Research | $125,000 |
| The National Cancer Institute | Bethesda, MD | Medical Research | $124,922 |
| Board Regents of the University of Oklahoma | Norman, OK | Medical Research | $116,813 |
| California Institute of Technology | Pasadena, CA | Medical Research | $100,000 |
| Epicrispr Biotechnologies Inc | South San Francisco, CA | Medical Research | $100,000 |
| University of Rochester | Rochester, NY | Medical Research | $100,000 |
| Usf Foundation | Tampa, FL | Medical Research | $100,000 |
| John Hopkins University | Baltimore, MD | Medical Research | $86,175 |
| The Highest Road Film LLC | Grapevine, TX | Disease Awareness | $80,000 |
| The University of Texas Southwestern Medical Center | Dallas, TX | Medical Research | $74,768 |
| St Jude Children's Research Hospital | Memphis, TN | Medical Research | $67,138 |
The 25 largest of 33 grants listed on the return. 1 grants to individuals ($13.4K) are counted but not named. Names and purposes as reported to the IRS.
Where its grants went
Quick answers
Does Friedreich's Ataxia Research Alliance accept grant applications?
Its Form 990 lists the grants it made but not how it chooses recipients. Check Friedreich's Ataxia Research Alliance's website or contact it to ask whether it considers requests. Form 990 does not report an application process, so confirm with the organization.
How much does Friedreich's Ataxia Research Alliance give each year?
For tax year 2024, it reported $7,130,651 in grants paid (33 grants). Giving can change from year to year.
What organizations has Friedreich's Ataxia Research Alliance funded?
Its largest grants in tax year 2024 went to The Broad Institute (MA), $1.95M, Children's Hospital of Philadelphia Research Institute (PA), $714K, Children's Hospital of Philadelphia Foundation (PA), $500K, University of Florida (FL), $359K and Regents of the University of Minnesota (MN), $340K.