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Grantmaking public charity · EIN 27-0950477

International Foundation For CDKL5 Research

Wadsworth, OH

International Foundation For CDKL5 Research is a public charity that makes grants based in Wadsworth, OH. On its Form 990 (Schedule I) for tax year 2024, it reported $149K in grants paid across 4 grants, with $977K in total assets. Its largest grants went to University of Oregon, Children's Hospital Philadelphia and Washington University School of Medicine.

How to request funding

Its Form 990 lists the grants it made but not how it chooses recipients. Check International Foundation For CDKL5 Research's website or contact it to ask whether it considers requests.

How it makes and monitors grants (Schedule I, Part IV)

A group of officers monitors how these funds are being used on a frequent basis.

Grants as reported on its Form 990 for tax year 2024; the application guidance above is general for this type of funder. Requirements change; confirm with the organization before applying.

Mission

To fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.

As stated on its Form 990.

Largest grants, tax year 2024

Historical data · not a prediction
RecipientLocationPurposeAmount
University of OregonEugene, ORResearch$55,874
Children's Hospital PhiladelphiaPhiladelphia, PAResearch$50,000
Washington University School of MedicineSaint Louis, MOResearch$30,000
Orphan Disease Center at University of PennsylvaniaPhiladelphia, PAResearch$13,400

Names and purposes as reported to the IRS.

Where its grants went

Quick answers

Does International Foundation For CDKL5 Research accept grant applications?

Its Form 990 lists the grants it made but not how it chooses recipients. Check International Foundation For CDKL5 Research's website or contact it to ask whether it considers requests. Form 990 does not report an application process, so confirm with the organization.

How much does International Foundation For CDKL5 Research give each year?

For tax year 2024, it reported $149,274 in grants paid (4 grants). Giving can change from year to year.

What organizations has International Foundation For CDKL5 Research funded?

Its largest grants in tax year 2024 went to University of Oregon (OR), $55.9K, Children's Hospital Philadelphia (PA), $50K, Washington University School of Medicine (MO), $30K and Orphan Disease Center at University of Pennsylvania (PA), $13.4K.