Grantmaking public charity · EIN 68-0567493
Pachyonychia Congenita Fund
Holladay, UT
Pachyonychia Congenita Fund is a public charity that makes grants based in Holladay, UT. On its Form 990 (Schedule I) for tax year 2024, it reported $247K in grants paid across 3 grants, with $3.01M in total assets. Its largest grants went to Massachusetts General Hospital, John Hopkins University Dept Neurosurgery and Ut Southwestern Medical Center Sponsored Programs Administration.
How to request funding
Its Form 990 lists the grants it made but not how it chooses recipients. Check Pachyonychia Congenita Fund's website or contact it to ask whether it considers requests.
How it makes and monitors grants (Schedule I, Part IV)
The use of grant funds are overseen by members of our international pachyonychia congenita consortium (ipcc) and medical and scientific advisory board (msab). we receive regular updates from the awardees/researchers about the progress of the grant project. the end product of a grant is normally a publication, presentation at our annual ipcc symposium, and/or a scientific poster with results of the grant project--all is shared with pc project
Grants as reported on its Form 990 for tax year 2024; the application guidance above is general for this type of funder. Requirements change; confirm with the organization before applying.
Mission
The organization's mission is to fight for a cure for the pachyonychia congenita disease, connect and help patients, and empower research.
As stated on its Form 990.
Largest grants, tax year 2024
Historical data · not a prediction| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| Massachusetts General Hospital | Boston, MA | PC Research | $99,206 |
| John Hopkins University Dept Neurosurgery | Baltimore, MD | PC Research | $97,500 |
| Ut Southwestern Medical Center Sponsored Programs Administration | Dallas, TX | PC Research | $50,000 |
Names and purposes as reported to the IRS.
Where its grants went
Quick answers
Does Pachyonychia Congenita Fund accept grant applications?
Its Form 990 lists the grants it made but not how it chooses recipients. Check Pachyonychia Congenita Fund's website or contact it to ask whether it considers requests. Form 990 does not report an application process, so confirm with the organization.
How much does Pachyonychia Congenita Fund give each year?
For tax year 2024, it reported $246,706 in grants paid (3 grants). Giving can change from year to year.
What organizations has Pachyonychia Congenita Fund funded?
Its largest grants in tax year 2024 went to Massachusetts General Hospital (MA), $99.2K, John Hopkins University Dept Neurosurgery (MD), $97.5K and Ut Southwestern Medical Center Sponsored Programs Administration (TX), $50K.