Grantmaking public charity · EIN 38-2813140
Ehlers-Danlos Society
New York, NY
Ehlers-Danlos Society is a public charity that makes grants based in New York, NY. On its Form 990 (Schedule I) for tax year 2025, it reported $2.8M in grants paid across 7 grants, with $9.62M in total assets. Its largest grants went to University of Colorado, Stanford University and Children's Hospital Corporation.
How to request funding
Its Form 990 lists the grants it made but not how it chooses recipients. Check Ehlers-Danlos Society's website or contact it to ask whether it considers requests.
How it makes and monitors grants (Schedule I, Part IV)
Grants are awarded by the board of directors based on applications for specific research funding. each awardee enters into a grant agreement that outlines the terms of the grant, including required milestones and annual or biannual reporting.
Grants as reported on its Form 990 for tax year 2025; the application guidance above is general for this type of funder. Requirements change; confirm with the organization before applying.
Mission
The ehlers-danlos society is a global orgnization dedicated to advancing and accelerating research and education in ehlers-danlos syndromes (eds) and hypermobilitiy spectrum disporders (hsd). we support the development of effective and equitable eds and hsd therapies and work collavoratively to impove the lives of individuals affected by eds and hsd.
As stated on its Form 990.
Largest grants, tax year 2025
Historical data · not a prediction| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| University of Colorado | Denver, CO | Research Grant | $847,953 |
| Stanford University | Redwood City, CA | Research Grants | $603,897 |
| Children's Hospital Corporation | Boston, MA | Research Grant | $382,692 |
| Carle Foundation Hospital | Urbana, IL | Research Grant | $316,727 |
| Rhode Island Hospital | Providence, RI | Research Grant | $296,286 |
| Indiana University Health Foundation | Indianapolis, IN | Research Grant | $288,476 |
| The Pennsylvania State University | University Park, PA | Research Grant | $60,113 |
Names and purposes as reported to the IRS.
Where its grants went
Quick answers
Does Ehlers-Danlos Society accept grant applications?
Its Form 990 lists the grants it made but not how it chooses recipients. Check Ehlers-Danlos Society's website or contact it to ask whether it considers requests. Form 990 does not report an application process, so confirm with the organization.
How much does Ehlers-Danlos Society give each year?
For tax year 2025, it reported $2,796,144 in grants paid (7 grants). Giving can change from year to year.
What organizations has Ehlers-Danlos Society funded?
Its largest grants in tax year 2025 went to University of Colorado (CO), $848K, Stanford University (CA), $604K, Children's Hospital Corporation (MA), $383K, Carle Foundation Hospital (IL), $317K and Rhode Island Hospital (RI), $296K.