Grantmaking public charity · EIN 31-1682518
International Rett Syndrome Foundation
Cincinnati, OH
International Rett Syndrome Foundation is a public charity that makes grants based in Cincinnati, OH. On its Form 990 (Schedule I) for tax year 2024, it reported $1.68M in grants paid across 12 grants, with $5.33M in total assets. Its largest grants went to The General Hospital Corporation dba Massachusetts General Hospital, University of Wisconsin-Madison and Vanderbilt University.
How to request funding
Its Form 990 lists the grants it made but not how it chooses recipients. Check International Rett Syndrome Foundation's website or contact it to ask whether it considers requests.
How it makes and monitors grants (Schedule I, Part IV)
Our Grant award process includes a letter of intent (LOI) submitted to the Foundation. LOIs are reviewed to determine whether the described project fits the intended research program and grant mechanisms. Applicants with eligible LOIs are asked to submit a full grant application and a peer-review meeting of scientific reviewers is convened to determine which projects have the highest scientific merit. Research grants are recommended to the foundation's Board of Directors who vote to approve. Researchers are then required to sign an acceptance agreement with the foundation and are required to submit two reports a year on progress. The Chief Science Officer and Manager of Grants & Research review the reports and corresponds with the researcher to ensure proper use of funds. The Foundation makes quarterly payments to all researchers, unless there is a special exception.
Grants as reported on its Form 990 for tax year 2024; the application guidance above is general for this type of funder. Requirements change; confirm with the organization before applying.
Mission
To fund reseach aimed at potential cures for Rett syndrome and to empower families through education.
As stated on its Form 990.
Largest grants, tax year 2024
Historical data · not a prediction| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| The General Hospital Corporation dba Massachusetts General Hospital | Somerville, MA | Rett Syndrome Research | $300,000 |
| University of Wisconsin-Madison | Madison, WI | Rett Syndrome Research | $300,000 |
| Vanderbilt University | Nashville, TN | Rett Syndrome Research | $137,500 |
| The Regents of the University of Colorado | Denver, CO | Rett Syndrome Research | $137,500 |
| The University of Texas Southwestern Medical Center | Dallas, TX | Rett Syndrome Research | $137,500 |
| University of Colorado Denver | Denver, CO | Rett Syndrome Research | $125,000 |
| North Carolina State University | Raleigh, NC | Rett Syndrome Research | $120,982 |
| The Rockefeller University | New York, NY | Rett Syndrome Research | $120,000 |
| The University of North Carolina at Chapel Hill | Chapel Hill, NC | Rett Syndrome Research | $100,000 |
| University of Virginia Rector & Visitors | Charlottesville, VA | Rett Syndrome Research | $100,000 |
| Regents of the University of California | Davis, CA | Rett Syndrome Research | $50,000 |
| Whitehead University | Cambridge, MA | Rett Syndrome Research | $50,000 |
Names and purposes as reported to the IRS.
Where its grants went
Quick answers
Does International Rett Syndrome Foundation accept grant applications?
Its Form 990 lists the grants it made but not how it chooses recipients. Check International Rett Syndrome Foundation's website or contact it to ask whether it considers requests. Form 990 does not report an application process, so confirm with the organization.
How much does International Rett Syndrome Foundation give each year?
For tax year 2024, it reported $1,678,482 in grants paid (12 grants). Giving can change from year to year.
What organizations has International Rett Syndrome Foundation funded?
Its largest grants in tax year 2024 went to The General Hospital Corporation dba Massachusetts General Hospital (MA), $300K, University of Wisconsin-Madison (WI), $300K, Vanderbilt University (TN), $138K, The Regents of the University of Colorado (CO), $138K and The University of Texas Southwestern Medical Center (TX), $138K.