Grantmaking public charity · EIN 26-0687439
Rett Syndrome Research Trust Inc
Trumbull, CT
Rett Syndrome Research Trust Inc is a public charity that makes grants based in Trumbull, CT. On its Form 990 (Schedule I) for tax year 2025, it reported $5.41M in grants paid across 17 grants, with $20.8M in total assets. Its largest grants went to Pre-Clinical Studies, Profluent and Viralgen.
How to request funding
Its Form 990 lists the grants it made but not how it chooses recipients. Check Rett Syndrome Research Trust Inc's website or contact it to ask whether it considers requests.
Grants as reported on its Form 990 for tax year 2025; the application guidance above is general for this type of funder. Requirements change; confirm with the organization before applying.
Mission
The organization's mission is focused on the development of treatments and cures for rett syndrome and related mecp2 disorders.
As stated on its Form 990.
Largest grants, tax year 2025
Historical data · not a prediction| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| Pre-Clinical Studies | Trumbull, CT | Rett Research | $1,100,000 |
| Profluent | Trumbull, CT | Rett Research | $1,000,000 |
| Viralgen | Trumbull, CT | Rett Research | $750,000 |
| University of California Davis | Trumbull, CT | Rna Editing | $474,894 |
| Jackson Labs | Trumbull, CT | Rett Research | $419,317 |
| 4basebio | Trumbull, CT | Rett Research | $350,000 |
| Shape Therapeutics | Trumbull, CT | Rett Research | $300,000 |
| Evox | Trumbull, CT | Rett Research | $240,000 |
| Duke | Trumbull, CT | Rett Research | $213,610 |
| Resplice | Trumbull, CT | Rett Research | $130,000 |
| Rett Syndrome Biorepository | Trumbull, CT | Rna Editing | $123,762 |
| Rett Syndrome Global Registry | Trumbull, CT | Rett Research | $110,490 |
| University of Massachusetts | Trumbull, CT | Rett Research | $84,791 |
| Senti Bio | Trumbull, CT | Rett Research | $50,000 |
| Children's Hospital of Montefiore | Trumbull, CT | Rett Research | $40,123 |
| Couragene | Trumbull, CT | Rett Research | $15,000 |
| Vivalink | Trumbull, CT | Rett Research | $8,741 |
Names and purposes as reported to the IRS.
Where its grants went
Quick answers
Does Rett Syndrome Research Trust Inc accept grant applications?
Its Form 990 lists the grants it made but not how it chooses recipients. Check Rett Syndrome Research Trust Inc's website or contact it to ask whether it considers requests. Form 990 does not report an application process, so confirm with the organization.
How much does Rett Syndrome Research Trust Inc give each year?
For tax year 2025, it reported $5,410,728 in grants paid (17 grants). Giving can change from year to year.
What organizations has Rett Syndrome Research Trust Inc funded?
Its largest grants in tax year 2025 went to Pre-Clinical Studies (CT), $1.1M, Profluent (CT), $1M, Viralgen (CT), $750K, University of California Davis (CT), $475K and Jackson Labs (CT), $419K.