Grantmaking public charity · EIN 22-2480896
Charcot-Marie-Tooth Association
Glenolden, PA
Charcot-Marie-Tooth Association is a public charity that makes grants based in Glenolden, PA. On its Form 990 (Schedule I) for tax year 2025, it reported $2.96M in grants paid across 20 grants, with $8.11M in total assets. Its largest grants went to University of Rochester, Psychogenics Inc and The Genesis Project Foundation.
How to request funding
Its Form 990 lists the grants it made but not how it chooses recipients. Check Charcot-Marie-Tooth Association's website or contact it to ask whether it considers requests.
Grants as reported on its Form 990 for tax year 2025; the application guidance above is general for this type of funder. Requirements change; confirm with the organization before applying.
Mission
To support the development of new drugs to treat charcot-marie-tooth disease (cmt), to improve the quality of life for people with cmt and ultimately, to fund a cure.
As stated on its Form 990.
Largest grants, tax year 2025
Historical data · not a prediction| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| University of Rochester | Rochester, NY | Cmt Research | $1,045,708 |
| Psychogenics Inc | New York, NY | Cmt Research | $773,212 |
| The Genesis Project Foundation | Miami, FL | Cmt Research | $423,000 |
| Jd Gladstone Institutes | San Francisco, CA | Cmt Research | $300,000 |
| Albany Medical College | Albany, NY | Cmt Research | $140,670 |
| University of California San Diego | San Diego, CA | Cmt Research | $90,860 |
| University of Pennsylvania | Philadelphia, PA | Cmt Research | $52,925 |
| University of Wisconsin - Madison | Madison, WI | Cmt Research | $25,000 |
| Henry Jackson Foundation | Bethesda, MD | Cmt Research | $20,000 |
| Cleveland Cliniclerner Research Ins | Cleveland, OH | Cmt Research | $15,446 |
| Children's National Medical Center | Washington, DC | Cmt Research | $10,000 |
| The Jackson Laboratory | Bar Harbor, ME | Cmt Research | $5,377 |
The 12 largest of 20 grants listed on the return. 8 grants to individuals ($28.6K) are counted but not named. Names and purposes as reported to the IRS.
Where its grants went
Quick answers
Does Charcot-Marie-Tooth Association accept grant applications?
Its Form 990 lists the grants it made but not how it chooses recipients. Check Charcot-Marie-Tooth Association's website or contact it to ask whether it considers requests. Form 990 does not report an application process, so confirm with the organization.
How much does Charcot-Marie-Tooth Association give each year?
For tax year 2025, it reported $2,962,491 in grants paid (20 grants). Giving can change from year to year.
What organizations has Charcot-Marie-Tooth Association funded?
Its largest grants in tax year 2025 went to University of Rochester (NY), $1.05M, Psychogenics Inc (NY), $773K, The Genesis Project Foundation (FL), $423K, Jd Gladstone Institutes (CA), $300K and Albany Medical College (NY), $141K.